The last four days have passed quietly. Nickolas will receive his last Busulfan dose on 8/25/08 @ 0100 hours. The nurses have marveled at how well he has been doing. Nick will get his first dose of Cytoxan at 0600 hours this morning. Cytoxan is a random big gun, not too particular about which cells it damages. Nick will have to receive lots of extra IV fluids to flush the kidneys and bladder and special medicine, called MESNA, to protect his bladder from the side effects of the Cytoxan. Nick has been doing very well. His appetite has been good and he has been doing his "laps." The nurses have told him he needs to keep up with his exercise, as this really helps with the healing process. He also has to be sure to do mouth care every 4-6 hours to minimize the germiness of this area. In addition, he has to shower every day to keep the Staph and Strep germs from taking up residence on his skin.Nick is not too thrilled about all this showering, but, he knows this is something he must do to stay healthy as possible. It takes a while for him to motivate to get into the shower, but, once he is in, he usually comes out feeling refreshed and clean!
Nick's catheter site is healing well and looks very good. Aunt Barbara is busily fixing a bunch of shirts with snaps on the right shoulder so he can run the hallways wearing his "regular" clothes.
Nick has been in good spirits...the days are long and boring already! I guess I could take boring if that was the worst thing that Nick has to deal with over the next month or so.
Don't have much to say right now...it is all a bit surreal. I am just waiting and hoping for everything to turn out ok. Just keep repeating...everything is gonna be alright!
1 comment:
Can Nick receive mail where his is now? If so, what address should we use? What a terrific Aunt Barbara!!! I think you two should definitely patent the shirt. I'm not surprised at all by your talent, creativity and ingenuity- typical of the Overtoom gals. Love, Miss Vic
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